New York’s I/DD community needs investments to save the state’s care service system that supports thousands of New Yorkers with intellectual and developmental disabilities.
New York Disability Advocates (NYDA) is a statewide coalition of more than 300 non-profit organizations providing vital services and support to more than 130,000 New Yorkers with intellectual and developmental disabilities. Across the state, these organizations provide comprehensive and individualized services and programs that support people with developmental disabilities in all areas of their lives—from physical and behavioral health services, to cooking and feeding, to creating meaningful employment opportunities.
The COVID-19 pandemic and subsequent economic crisis exposed the vulnerabilities of this essential system of care and had a devastating effect on individuals with I/DD, who are at increased risk of contracting and suffering serious complications from the coronavirus. Now, this system is on the verge of crumbling as a result of looming budget cuts, chronic underfunding, and the impacts of the pandemic.
90% of the sector’s funding comes from the state government. Therefore, to sustain the system long-term and allow organizations to continue to provide lifelong support and care, New York State must:
7.8% Medicaid Rate Increase
Following decades of underfunding, critical investments are needed to support the non-profit care services sector. A 7.8% Medicaid rate increase in the state budget is needed to combat the substantial inflationary growth over the past year, leaving non-profit providers lacking the resources necessary to meet demand.
Over the past year, the increasing costs associated with mandated fringe benefits, repairs and maintenance, utilities, food, supplies, transportation, and insurance have financially strained provider agencies. These cost increases are compounded by the fact that I/DD provider agencies rely solely on Medicaid funding, leaving them unable to increase reimbursement for services to compensate for increased costs of operations. Investment is needed to address these financial burdens and ensure sustained support for these essential care services.
Enhanced Capital Funding
Non-profit provider agencies are also in desperate need of enhanced capital funding to help modernize their operations, making them more energy-efficient and in alignment with the state’s climate goals. Upgrades would not only help providers reduce energy costs and improve operations, but they would make the facilities where the I/DD community works and lives adequate.
Creation of a Wage Commission
The creation of a wage commission is needed to examine the roles and responsibilities of human service workers and establish fair, sustainable compensation standards commensurate with their work. As highly skilled professionals dedicated to the essential care of individuals with I/DD, DSPs take on numerous critical responsibilities to uplift the safety, productivity, and well-being of the entire I/DD community.
DSPs are responsible for providing important practical & administrative support such as first aid & CPR, administering medication, meal preparation or transport facilitation, as well as, attending to the comprehensive social, emotional, & psychological needs of those they care for. Whether it’s teaching personal care skills and money management or directing crisis de-escalation, DSPs are required to be well trained, skilled, and constantly prepared for all the essential life-support services their profession demands.
Through their fundamental support & services, DSPs are integral pillars of support for New York’s I/DD community and are crucial in ensuring that over 130,000 New Yorkers with I/DD can live their highest quality of life.
Over the past few years, OPWDD has provided significant increases to their own DSP workforce who provide the same supports and services to the same population. Currently, OPWDD employed DSPs make up to $10/per hour more than their non-profit counterparts despite doing the same job. The creation of a wage commission is essential to ensure that DSPs at non-profit provider agencies are adequately compensated for their roles.
Fosters independence, support families and prioritize inclusion
Employs more than 120,000 New Yorkers, mostly women and minorities
The I/DD service sector is frequently one of the largest area employers, driving increased economic activity in communities
Addresses external health impacts and providing cost-effective delivery of care
Join the effort to make New Yorkers with intellectual and developmental disabilities a priority! Send a message to the State to save this system of care.